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End of life care: The experiences of advance care planning amongst family caregivers of people with advanced dementia - A qualitative study

Ashton, SE and Roe, B and Jack, B and McClelland, B (2016) End of life care: The experiences of advance care planning amongst family caregivers of people with advanced dementia - A qualitative study. Dementia-International Journal of Social Research and Practice, 15 (5). pp. 958-975. ISSN 1471-3012

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Abstract

Background: End of life decisions for people with advanced dementia are reported as often being difficult for families as they attempt to make appropriate and justified decisions.
Aim: To explore the experiences of advance care planning amongst family caregivers of people with advanced dementia.
Design: Qualitative research including a series of single cases (close family relatives).
Methods: A purposive sample of 12 family caregivers within a specialist dementia unit was interviewed about their experiences of advance care planning between August 2009 and February 2010.
Results/Findings: Family caregivers need encouragement to ask the right questions during advance care planning to discuss the appropriateness of nursing and medical interventions at the end of life.
Conclusions: Advance care planning can be facilitated with the family caregiver in the context of everyday practice within the nursing home environment for older people with dementia.

Item Type: Article
Uncontrolled Keywords: 1103 Clinical Sciences, 1110 Nursing, 1702 Cognitive Science
Subjects: R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
R Medicine > RT Nursing
Divisions: Public Health Institute
School of Nursing & Allied Health
Publisher: SAGE Publications
Related URLs:
Date Deposited: 29 Nov 2016 12:20
Last Modified: 07 Sep 2017 13:19
DOI or Identification number: 10.1177/1471301214548521
URI: http://researchonline.ljmu.ac.uk/id/eprint/4929

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