Lotto, R, Harky, A and Lotto, AA (2022) Quality of Life and Patient Reported Outcomes in Paediatric Cardiac Surgery Patients. In: Darzi, A, (ed.) Patient Reported Outcomes and Quality of Life in Cardiovascular Interventions. Springer, Cham.

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Abstract

Patient reported outcome measures (PROMS) are tools used to record outcomes that reflect patients’ or caregivers’ perspectives of the impact of the condition on their lives, including how illness is experienced. These are composed of five dimensions, namely: quality of life or more specifically health related quality of life; functional status; symptoms and symptom burden; and patient experience and health behaviours. As mortality rates associated with congenital heart disease plateau, the focus shifts to improving associated morbidity. PROMS play an essential role, providing tools through which to assess patient’s general quality of life. Whilst a number of predictors of poor quality of life are identified within the literature, evidence is generally poor, with a wide variation in tools applied thus making comparisons difficult. The need to strengthen the evidence based is growing, with increasing numbers of patients surviving until adulthood, and adults with CHD now outnumbering children.

Item Type:	Book Section
Subjects:	R Medicine > RD Surgery R Medicine > RJ Pediatrics R Medicine > RT Nursing
Divisions:	Nursing & Allied Health
Publisher:	Springer, Cham
Related URLs:	https://blackwells.co.uk/bookshop/produc...
SWORD Depositor:	A Symplectic
Date Deposited:	01 Nov 2022 14:19
Last Modified:	29 Nov 2022 12:57
DOI or ID number:	10.1007/978-3-031-09815-4_12
Editors:	Darzi, A
URI:	https://researchonline.ljmu.ac.uk/id/eprint/16950

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