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Understanding the influence of culture on caregiving process for people affected by dementia: an urgent call to end exclusion in mental health service delivery in the United Kingdom

Bifarin, O and Kamil-Thomas, Z (2023) Understanding the influence of culture on caregiving process for people affected by dementia: an urgent call to end exclusion in mental health service delivery in the United Kingdom. International Psychogeriatrics. pp. 1-7. ISSN 1041-6102

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Abstract

Commentary on “Equity in care and support provision for people affected by dementia: experiences of people from UK South Asian and White British background”. By James et al. James et al. (2023) focused on equity in care and support for people affected by dementia in the United Kingdom, drawing on experiences of South Asian and White British ethnic groups who were people living with dementia, family carers, and clinicians from eight memory clinics across four United Kingdom (UK) National Health Service (NHS) Trusts. Findings showed that irrespective of ethnicity, care preferences with regards to who provides care varied across families with limited financial resources and English language literacy being a barrier to meeting identified needs. Authors also focused on difference between clinicians’ perceptions of South Asians’ care preferences and what people affected by dementia from this community want. With the increase in ageing population globally, the prevalence of dementia in the UK is projected to increase by 80% from around 885,000 in 2019 to around 1.6 million in 2040 (Wittenberg et al., 2019), their findings raise questions around the sustainability of family caregiving as existing inequities make it important to reflect on the third goal of the Sustainability Development Goals (SDG) (United Nations, 2015). This SDG goal emphasised the need for everyone, irrespective of age, to have good health and wellbeing. Moreso, issues relating to the health and wellbeing of minoritised ethnic communities have not been taken seriously by statutory health and social care providers in the UK for too long due to lack of appropriate healthcare treatment, discriminatory treatment by staff, and avoidance of services all together due to fear of being gaslighted and lack of trust (Kapadia et al., 2022).

Item Type: Article
Additional Information: This is the author final version accepted to be published in International Psychogeriatrics, Bifarin O, Kamil-Thomas Z. Understanding the influence of culture on caregiving process for people affected by dementia: an urgent call to end exclusion in mental health service delivery in the United Kingdom. Published online 2023:1-7. doi:10.1017/S1041610223000273
Uncontrolled Keywords: 11 Medical and Health Sciences; 17 Psychology and Cognitive Sciences; Geriatrics
Subjects: B Philosophy. Psychology. Religion > BF Psychology
R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
H Social Sciences > HV Social pathology. Social and public welfare. Criminology > HV697 Protection, assistance and relief > HV1551 People with disabilities
Divisions: Nursing & Allied Health
Publisher: Cambridge University Press (CUP)
SWORD Depositor: A Symplectic
Date Deposited: 28 Mar 2023 10:57
Last Modified: 20 Feb 2024 15:30
DOI or ID number: 10.1017/s1041610223000273
URI: https://researchonline.ljmu.ac.uk/id/eprint/19167
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