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Hereditary Angioedema patient experiences of medication use and emergency care

Burton, AE, Lindsay-Wiles, I, Herron, D, Owen, A, Elliott, J, Metcalfe, A and Diwakar, L (2023) Hereditary Angioedema patient experiences of medication use and emergency care. International Emergency Nursing, 71. ISSN 1755-599X

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Background: Hereditary angioedema (HAE) is a rare inherited illness characterised by recurrent swellings. Four percent of HAE attacks are life threatening throat swellings requiring urgent medical intervention. The aim of this study was to gain an in depth understanding of patient experiences of use of treatment and emergency care. Methods: 65 participants completed an online survey including open ended questions about their experiences and/or completed an in-depth interview. Interview participants were asked to share and talk about up to five images that they felt best represented their life experiences with HAE. Data were analysed using reflexive thematic analysis. Results: Treatment experiences highlighted the life changing nature of new treatments and benefits for quality of life, but also illustrated common barriers to treatment administration. Emergency care experiences illustrated how throat attacks and fear of their future occurrence could be traumatic. Discussion: Findings indicate that HAE patients need psychological support to process fears and negative experiences. In addition, psychological barriers to treatment administration must be addressed to ensure treatment is used effectively. Education for emergency practitioners is also needed to improve emergency treatment and reduce the psychological burden of delayed emergency care.

Item Type: Article
Uncontrolled Keywords: Humans; Emergency Treatment; Quality of Life; Emergency Medical Services; Angioedemas, Hereditary; Patient Outcome Assessment; Emergency care; Hereditary Angioedema; Qualitative research; Treatment; Humans; Quality of Life; Angioedemas, Hereditary; Emergency Medical Services; Emergency Treatment; Patient Outcome Assessment; 1110 Nursing; Nursing
Subjects: B Philosophy. Psychology. Religion > BF Psychology
R Medicine > RA Public aspects of medicine
Divisions: Psychology (from Sep 2019)
Publisher: Elsevier
SWORD Depositor: A Symplectic
Date Deposited: 05 Jun 2024 14:27
Last Modified: 05 Jun 2024 14:30
DOI or ID number: 10.1016/j.ienj.2023.101339
URI: https://researchonline.ljmu.ac.uk/id/eprint/23428
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