Patient and public involvement in the management and prevention of cardiovascular disease: a statement of the Association of Cardiovascular Nursing and Allied Professions of the ESC and the ESC Patient Forum

Hendriks, JM orcid iconORCID: 0000-0003-4326-9256, McGreavy, P orcid iconORCID: 0000-0001-8651-9476, Fredericks, S orcid iconORCID: 0000-0002-7462-636X, Jones, I orcid iconORCID: 0000-0002-3081-0069, Ainslie, J, Gomes, A orcid iconORCID: 0000-0003-0941-8473 and Sanders, J orcid iconORCID: 0000-0002-7335-2803 (2026) Patient and public involvement in the management and prevention of cardiovascular disease: a statement of the Association of Cardiovascular Nursing and Allied Professions of the ESC and the ESC Patient Forum. European Journal of Cardiovascular Nursing. ISSN 1474-5151

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Abstract

Patient and public involvement (PPI) plays a pivotal role in enhancing the management and prevention of cardiovascular disease (CVD), at multiple levels. The partnership with patients and the public, those who are directly affected by CVD, is central to delivering personalized care, and may contribute to decreasing the burden of CVD and reducing health inequalities. This statement describes the concept of PPI and highlights the role of PPI across different settings including: clinical practice, research, regulatory processes, and policy and clinical guideline development. Recognition of the value of PPI and how to create environments and infrastructure to embed PPI into these areas requires further attention, specifically for under-represented communities. Therefore, considerations for good practice as well as future directions for improvement are provided. Whilst the content of this paper focusses on CVD, the insights provided can be applied to other conditions.

Item Type: Article
Uncontrolled Keywords: Cardiovascular disease; Consumer involvement; Decision-making; Patient and public; 4203 Health Services and Systems; 42 Health Sciences; Heart Disease; Cardiovascular; Prevention; Cardiovascular; 3 Good Health and Well Being; 1102 Cardiorespiratory Medicine and Haematology; 1110 Nursing; 1117 Public Health and Health Services; Nursing; 3201 Cardiovascular medicine and haematology; 4205 Nursing
Subjects: R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
R Medicine > RT Nursing
Divisions: Nursing and Advanced Practice
Publisher: Oxford University Press
Date of acceptance: 23 September 2025
Date of first compliant Open Access: 8 June 2026
Date Deposited: 08 Jun 2026 12:37
Last Modified: 08 Jun 2026 12:37
DOI or ID number: 10.1093/eurjcn/zvaf191
URI: https://researchonline.ljmu.ac.uk/id/eprint/28774
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