Facial reconstruction

Search LJMU Research Online

Browse Repository | Browse E-Theses

Perspectives on the Social, Physical and Emotional Impact of Living with Perthes’ Disease in Children and their Family: a Mixed Methods Study.

Leo, DG, Murphy, RC, Gambling, T, Long, A, Jones, H and Perry, D (2019) Perspectives on the Social, Physical and Emotional Impact of Living with Perthes’ Disease in Children and their Family: a Mixed Methods Study. Global Pediatric Health, 6. pp. 1-10. ISSN 2333-794X

[img]
Preview
Text
Perspectives on the Social, Physical, and Emotional Impact of Living With Perthes' Disease in Children and their Family.pdf - Published Version
Available under License Creative Commons Attribution.

Download (241kB) | Preview

Abstract

Aim: To determine the social, physical and emotional impact of living with Perthes’ disease on affected children and their family (caregivers). Patients and Methods: Through a mixed methods approach, we interviewed 18 parents and explored the perspectives of 12 children affected by Perthes’ disease (mean 7.1 years, SD±4.1 years) using a survey tool. Thematic analysis of parents’ interviews provided an insight into disease-specific factors influencing patients and family’s daily life activities. Using the childhood survey tool, good and bad day scores were analyzed using MANOVA. Results: Thematic analysis of the parent interviews (main themes n=4) identified a marked effect of the disease on many facets of the child’s life, particularly pain and the impact on sleep, play and school attendance. In addition, the interviews identified a negative effect on the family life of the parents and siblings. Children indicated that activities of daily living were affected even during ‘good days’ (p<0.05) but pain was the key limiting factor. Conclusion: Perthes’ disease negatively affects the social, physical and emotional well-being of children and their family. These findings provide outcome domains that are important to measure in day-to-day care and add in-depth insight into the challenges caused by this disease for health care professionals involved in clinical management.

Item Type: Article
Subjects: Q Science > QP Physiology
R Medicine > RC Internal medicine > RC1200 Sports Medicine
Divisions: Sport & Exercise Sciences
Publisher: Sage
Date Deposited: 01 Feb 2019 10:31
Last Modified: 30 Jan 2020 12:16
DOI or Identification number: 10.1177/2333794X19835235
URI: https://researchonline.ljmu.ac.uk/id/eprint/10095

Actions (login required)

View Item View Item