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Roberts, D (2018) Chronic fatigue syndrome and quality of life. Patient Relat Outcome Meas, 9. pp. 253-262. ISSN 1179-271X
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Abstract
Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), is a challenging long-term condition (LTC) with complex and fluctuating symptoms. It is heterogeneous in presentation without diagnostic indicators; therefore, in health care encounters, insight must be gained from the patient's perspective. One indicator of impact can be gained by measuring quality of life (QoL). By applying a patient-reported outcome measure (PROM), professionals can gather insights with direct relevance to the patient questioned. Such a tool can act therapeutically tool to promote holistic and individualized professional interventions and interval measurement can inform commissioning of specialist services. Standard practice appears not fully to capture the experience of CFS, while a search of the literature turned up QoL patient-reported outcome tools, but failed to reveal a CFS/ME-specific measure. The author explores a valid and reliable PROM that can monitor change and evaluate the UK National Institute of Clinical Excellence rehabilitation program, as delivered by specialist National Health Service units. An alternative, the World Health Organization's quality-of life instrument (WHOQoL)-Bref26, is reviewed for relevance to the condition, measuring treatment outcomes and the wider debate of measuring QoL in LTCs.
| Item Type: | Article |
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| Uncontrolled Keywords: | 1117 Public Health and Health Services |
| Subjects: | R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine R Medicine > RT Nursing R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine > RA0440 Study and Teaching. Research |
| Divisions: | Nursing & Allied Health |
| Publisher: | Dove Medical Press |
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| Date Deposited: | 06 Mar 2020 12:57 |
| Last Modified: | 04 Sep 2021 07:45 |
| DOI or ID number: | 10.2147/PROM.S155642 |
| URI: | https://researchonline.ljmu.ac.uk/id/eprint/12432 |
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