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Ashton, SE, Roe, B, Jack, B and McClelland, B (2014) End of life care: The experiences of advance care planning amongst family caregivers of people with advanced dementia - A qualitative study. Dementia-International Journal of Social Research and Practice, 15 (5). pp. 958-975. ISSN 1471-3012
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End of life care The experiences of advance care planning amongst family caregivers of people with advanced dementia - A qualitative study.pdf - Accepted Version Download (599kB) | Preview |
Abstract
Background: End of life decisions for people with advanced dementia are reported as often being difficult for families as they attempt to make appropriate and justified decisions.
Aim: To explore the experiences of advance care planning amongst family caregivers of people with advanced dementia.
Design: Qualitative research including a series of single cases (close family relatives).
Methods: A purposive sample of 12 family caregivers within a specialist dementia unit was interviewed about their experiences of advance care planning between August 2009 and February 2010.
Results/Findings: Family caregivers need encouragement to ask the right questions during advance care planning to discuss the appropriateness of nursing and medical interventions at the end of life.
Conclusions: Advance care planning can be facilitated with the family caregiver in the context of everyday practice within the nursing home environment for older people with dementia.
| Item Type: | Article |
|---|---|
| Uncontrolled Keywords: | 1103 Clinical Sciences, 1110 Nursing, 1702 Cognitive Science |
| Subjects: | R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine R Medicine > RT Nursing |
| Divisions: | Nursing & Allied Health Public Health Institute |
| Publisher: | SAGE Publications |
| Related URLs: | |
| Date Deposited: | 29 Nov 2016 12:20 |
| Last Modified: | 04 Sep 2021 12:13 |
| DOI or ID number: | 10.1177/1471301214548521 |
| URI: | https://researchonline.ljmu.ac.uk/id/eprint/4929 |
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