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Lattimore, P and Harrison, F (2022) Pilot Study of an Online-delivered Mindfulness Meditation in Ehlers-Danlos Syndrome (hEDS): Effect on Quality-of-Life and Participant Lived Experience. Disability and Rehabilitation. ISSN 0963-8288
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Pilot study of an online delivered mindfulness meditation in Ehlers Danlos syndrome hEDS.pdf - Published Version Available under License Creative Commons Attribution Non-commercial No Derivatives. Download (970kB) | Preview |
Abstract
Purpose: Ehlers Danlos Syndromes (EDS) are connective tissue disorders with multi-systemic symptoms. Management of chronic pain and other symptoms of EDS is a challenge for patients and clinicians. Mindfulness-based approaches for chronic pain produce improvement in pain symptoms. Mindfulness meditation could be an acceptable and readily accessible therapy for pain in EDS. This study evaluated the effect of daily practice of mindfulness meditation on pain experience and quality of life in EDS. Materials and Methods: A pre-post design enabled assessment of change in quality-of-life (SF-36) after practicing internet-delivered mindful meditation for 2-weeks. Thematic analysis of interviews (n = 10) documented lived experience of meditation practice for pain symptoms. 157 were recruited from UK EDS charities mailing lists. 76 completed the two-week intervention. Results: There was a statistically significant improvement in the SF-36 mental component summary score of medium effect size; the change was clinically important. Thematic analysis revealed three key themes of lived experience relating to increased body awareness, reduction in pain intensity, and barriers to practicing meditation. Conclusions: This study provides novel evidence about the effect and experience of meditation for symptoms in people with EDS. The outcomes warrant further research with appropriate control groups to determine efficacy.
| Item Type: | Article |
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| Uncontrolled Keywords: | Ehlers-Danlos; Pain; Mindfulness; Meditation; Quality-of-Life; Rehabilitation; 11 Medical and Health Sciences |
| Subjects: | B Philosophy. Psychology. Religion > BF Psychology R Medicine > RM Therapeutics. Pharmacology |
| Divisions: | Psychology (from Sep 2019) |
| Publisher: | Taylor and Francis Group |
| SWORD Depositor: | A Symplectic |
| Date Deposited: | 25 Oct 2022 13:52 |
| Last Modified: | 08 Nov 2022 11:00 |
| DOI or ID number: | 10.1080/09638288.2022.2140843 |
| URI: | https://researchonline.ljmu.ac.uk/id/eprint/17933 |
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