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Carter, B, Bray, L, Keating, P and Wilkinson, C (2017) Parent-Driven Campaign Videos: An Analysis of the Motivation and Affect of Videos Created by Parents of Children With Complex Healthcare Needs. Comprehensive Child and Adolescent Nursing, 41 (4). pp. 276-292. ISSN 2469-4193
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Parent drivenNotaNursepaperAccepted.pdf - Accepted Version Download (1MB) | Preview |
Abstract
Caring for a child with complex health care needs places additional stress and time demands on parents. Parents often turn to their peers to share their experiences, gain support, and lobby for change; increasingly this is done through social media. The WellChild #notanurse but is a parent-driven campaign that states its aim is to "shine a light" on the care parents, who are not nurses, have to undertake for their child with complex health care needs and to raise decision-makers' awareness of the gaps in service provision and support. This article reports on a study that analyzed the #notanurse but parent-driven campaign videos. The purpose of the study was to consider the videos in terms of the range, content, context, perspectivity (motivation), and affect (sense of being there) in order to inform the future direction of the campaign. Analysis involved repeated viewing of a subset of 30 purposively selected videos and documenting our analysis on a specifically designed data extraction sheet. Each video was analyzed by a minimum of 2 researchers. All but 2 of the 30 videos were filmed inside the home. A variety of filming techniques were used. Mothers were the main narrators in all but 1 set of videos. The sense of perspectivity was clearly linked to the campaign with the narration pressing home the reality, complexity, and need for vigilance in caring for a child with complex health care needs. Different clinical tasks and routines undertaken as part of the child's care were depicted. Videos also reported on a sense of feeling different than "normal families"; the affect varied among the researchers, ranging from strong to weaker emotional responses.
| Item Type: | Article |
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| Additional Information: | This is an Accepted Manuscript of an article published by Taylor & Francis in Comprehensive Child and Adolescent Nursing on 15th September 2017, available online: http://www.tandfonline.com/10.1080/24694193.2017.1373160 |
| Uncontrolled Keywords: | Affect; complex healthcare needs; motivation; parent videos; parent-driven campaign; perspectivity; social media; video analysis |
| Subjects: | R Medicine > RT Nursing T Technology > T Technology (General) H Social Sciences > HV Social pathology. Social and public welfare. Criminology > HV697 Protection, assistance and relief > HV888 Children with disabilities |
| Divisions: | Education |
| Publisher: | Taylor & Francis |
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| Date Deposited: | 07 Nov 2019 11:11 |
| Last Modified: | 04 Sep 2021 08:32 |
| DOI or ID number: | 10.1080/24694193.2017.1373160 |
| URI: | https://researchonline.ljmu.ac.uk/id/eprint/11693 |
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